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Persons with Disabilities (Persons with Disabilities Home)

HIV/AIDS & Persons with Physical and Mental Disabilities: A Guide to Selected Resources, April 2000
Table of Contents

ORGANIZATIONS

The listings in this section are drawn from the NPIN Resources and Services Database and include organizations that provide information and services on HIV/AIDS to people with mental and physical disabilities. The national organizations listed here analyze policy, maintain clearinghouses, and advocate on behalf of people with disabilities. Many of these organizations are affiliated with or are collaborating with state, local, and regional organizations that provide services directly to this community.

The national organizations are listed first, followed by state, regional, and local organizations, which are divided by state and listed alphabetically. This list is not comprehensive. For names and contact information for additional organizations that provide information and services to persons with disabilities, contact NPIN at 800-458-5231 (800-243-7012 TTY), or visit the NPIN Web site at http://www.cdcnpin.org and search our Resources and Services Database.

National and International Organizations

American Printing House for the Blind (APH)
1839 Frankfort Avenue
Louisville, KY 40206-0085 (Street Address)
P.O. Box 6085
Louisville, KY 40206-0085 (Mailing Address)
502-895-2405 (Main)

APH provides materials for persons who are blind, including textbooks and magazines in Braille and large print. APH also records books and produces educational tools such as Braille writing and embossing equipment, computer software and hardware, and low-vision aids.

Association for Retarded Citizens United States (ARC)
500 East Border Street, Suite 300
Arlington, TX 76010 (Street Address)
P.O. Box 1047
Arlington, TX 76004 (Mailing Address)
800-433-5255 (English Toll-Free)
817-261-6003 (Main)
817-277-0553 (TTY)
817-277-3491 (Fax)
thearc@metronet.com (E-mail)
http://www.thearc.org/welcome.html (Web Site)

ARC educates mentally retarded adults and their parents and peers about HIV/AIDS prevention and provides prevention education and policy training to healthcare workers who serve men-tally retarded people. ARC also produces and distributes educational resources for adults with mental retardation and for HIV/AIDS service providers.

Books Aloud, Inc.
180 West San Carlos Street
San Jose, CA 95113 (Street Address)
P.O. Box 5731
San Jose, CA 95150-5731 (Mailing Address)
408-277-4878 (Main)
408-277-4818 (Fax)
Books Aloud provides cassettes on subjects of general interest for the blind, physically disabled, and learning disabled, including those incapaci-tated because of HIV/AIDS.

CDC National AIDS Hotline TTY Service
American Social Health Association
P.O. Box 13827
Research Triangle Park, NC 27709
800-342-AIDS (Toll-Free)
nahl@asha.emcdc.gov (E-mail)
http://www.ashastd.org (Web Site)

The CDC National AIDS Hotline is a toll-free service available to people with hearing disabilities 24 hours a day, seven days a week throughout the United States and its territories. The Hotline provides callers with confidential information, education, and referrals related to AIDS and HIV infection. Specially trained staff are available to answer calls through a machine for the deaf.

The Hemophilia AIDS Network/National Hemophilia Foundation
110 Greene Street, Suite 303
New York, NY 10012
800-424-2634 (Toll-Free)
handi@hemophilia.org (E-mail)
http://www.hemophilia.org (Web Site)

The Hemophilia AIDS Network/National Hemophilia Foundation operates as a clearing-house for information on transfusion-related AIDS and serves as a coalition for state hemophilia foundations. This organization also provides brochures and other educational materials.

Lambda Legal Defense and Education Fund
120 Wall Street, Suite 1500
New York, NY 10005-3904
212-809-8585 (Main)
212-809-0055 (Fax)
general@lambdalegal.org (E-mail)
http://www.lambdalegal.org (Web Site)

Lambda Legal Defense and Education Fund is a national organization committed to achieving full recognition of the civil rights of lesbians, gay men, and people with HIV/AIDS through impact litigation, education, and public policy work.

National Alliance for the Visually Handicapped (NAVH)
22 West 21st Street
New York, NY 10010
212-889-3141 (Main)

NAVH offers services for persons with low vision. Large print publications are available for persons with low vision, professionals, paraprofessionals, and families.

National Association of Protection and Advocacy Systems (NAPAS)
900 Second Street, NE
Washington, DC 20002
202-408-9514 (Main)
202-489-9521 (TTY/TTD)
202-408-9520 (Fax)
napas@zipmail.earthlink.net (E-mail) http://www.protectionandadvocacy.com (Web Site)

Since 1989, NAPAS has served as a clearinghouse on AIDS for its 80 member agencies representing physically and mentally disabled people nationwide. The project strives to develop links and information exchanges between state protection and advocacy systems and community-based AIDS organizations.

National Association of the Deaf (NAD)
814 Thayer Avenue
Silver Spring, MD 20910
301-587-1788 (Voice)
301-587-1789 (TTY)

NAD provides advocacy and education about issues impacting the lives of deaf and hard-of-hearing persons.

National Information Center on Deafness (NICD)
Gallaudet University
800 Florida Avenue, NE
Washington, DC 20002-3695
202-651-5051 (Main)
202-651-5052 (TTY)
nichd@gallux.gallaudet.edu (E-mail)
http://www.gallaudet.edu/~nicd (Web Site)

NICD collects, develops, and shares information on all aspects of hearing loss and deafness, and provides fact sheets and HIV prevention education for deaf people.

National Institute of Child Health and Human Development (NICHD)
900 Rockville Pike, Building 31
Room 2A32
Bethesda, MD 20892
301-496-5133 (Main)
301-496-7101 (Fax)
http://www.nih.gov/nichd/home.html (Web Site)

The NICHD conducts research projects concerning HIV/AIDS. Topics of study include the natural history of the HIV virus, pharmaceutical possibilities, and new techniques for early diagnosis of HIV infection in infants and children.

National Library Service for the Blind and Physically Handicapped
Library of Congress
1291 Taylor Street, NW
Washington, DC 20542
202-707-5100 (Main)

This service provides, free of charge, recorded and Braille materials to persons with visual impairments. They also work with regional libraries to provide for blind people.

National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
212-986-3240 (Main)
800-344-4867 (Toll-Free)
info@nmss.org (E-mail)
http://www.nmss.org (Web Site)

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of multiple sclerosis.

President’s Committee on Employment of People with Disabilities
1331 F Street, NW, Suite 300
Washington, DC 20004-1107
202-376-6200 (Voice)
202-376-6205 (TTY)
202-376-6219 (Fax)
info@pcepd.gov (E-mail)

The President’s Committee is a small federal agency that searches for solutions to obstacles confronting the employment of people with disabilities.

Recording for the Blind (RFB)
20 Roszel Road
Princeton, NJ 08540
609-452-0606 (Main)
800-221-4972 (Book Orders Only)

RFB provides recorded textbooks, library services, and other educational services to individuals who cannot read regular print because of a visual, perceptual, or physical disability.

Sexuality Information and Education Council of the U.S. (SIECUS)
1638 R Street, NW
Washington, DC 20009
202-265-2405 (Main)
202-462-2340 (Fax)
http://www.siecus.org (Web Site)

SIECUS provides sexuality information to healthcare professionals, educators, policy makers, students, and the general public. Under a federal grant from the Centers for Disease Control and Prevention (CDC), SIECUS initiated its National AIDS Education and Information Program. In 1995 SIECUS produced an anno-tated bibliography titled Sexuality and Disability, available through their Web Site.

United States Equal Employment Opportunity Commission (EEOC)
1801 L Street, NW
Washington, DC 20507
800-669-4000 (Toll-Free)
800-669-6820 (TTY)
http://www.eeoc.gov (Web Site)

The EEOC promotes equal opportunity in em-ployment by enforcing federal civil rights employ-ment laws through administrative and judicial actions, as well as education and technical assistance.

State, Regional, and Local Organizations

CALIFORNIA

Adult Independence Development Center (AIDC)
1601 Civic Center Drive, Suite 100
Santa Clara, CA 95050
408-985-1243 (Main)
408-985-9243 (TTY-TTD)
408-985-0671 (Fax)
http://www.svilc.org (Web Site)

The AIDC provides support for the physically disabled, including those with AIDS, to help them develop their personal skills and independence. Services include vocational and peer counseling, attendant care, and the development of leisure skills.

AIDS Education Services for the Deaf (AESD)
Greater Los Angeles Council on Deafness
2222 Laverna Avenue
Los Angeles, CA 90041
323-478-8005 (Voice/TTY)

A project of the Greater Los Angeles Council on Deafness, AESD was created by deaf professionals to provide quality education and HIV-related services to the deaf. AESD also provides brochures, fact sheets, and videos.

Association of Regional Center Agencies (ARCA)
915 L Street, Suite 1050
Sacramento, CA 95814
916-446-7961 (Main)
510-558-0671 (Other)
916-446-6912 (Fax)
http://www.arcanet.org (Web Site)

ARCA is composed of 21 regional centers for the developmentally disabled in California. Its AIDS Education Project has developed a curricu-lum and materials for providing AIDS education to professional staff, service providers, and parents of people with developmental disabilities.

Deaf AIDS Project
University of California San Francisco (UCSF)
Center on Deafness
3333 California Street, Suite 10
San Francisco, CA 94143-1208
415-476-4980 (Voice)
415-476-7600 (TTY)

The USCF Deaf AIDS Project helps deaf and hearing-impaired people with HIV/AIDS to obtain services such as counseling, referrals, living support, interpreting, assistive devices, and HIV/ AIDS prevention education.

Protection and Advocacy, Inc. (PAI)
100 Howe Avenue, Suite 185-N
Sacramento, CA 95825-8202
800-776-5746 (Toll-Free in California)
916-488-9950 (Main)
916-488-9960 (Fax, Legal office)
800-776-5746 (TTY Toll-Free)
916-488-2365 (Fax)
http://www.pai-ca.org (Web Site)

PAI provides legal assistance, litigation support, case management, and referral services to people living with AIDS who have mental or developmental disabilities. The organization also provides outreach, training, materials, and education.

Redwood Coast Regional Center (RCRC)
808 E Street Eureka, CA 95501
707-445-0893 (Main)
707-444-3309 (Fax)

RCRC provides services to the developmentally disabled, including HIV/AIDS education and training in community and residential settings, safer sex education, and developmentally appropriate AIDS education.

United Cerebral Palsy Association of Santa Clara/ San Mateo Counties
480 San Antonio Road, Suite 215
Mountain View, CA 94040-1218
408-279-8987 (Main)
415-917-6900 (Other)
415-948-8503 (Fax)

The United Cerebral Palsy Association of Santa Clara/San Mateo Counties serves people with cerebral palsy and those with related conditions, including autism, epilepsy, muscular dystrophy, spina bifida, and multiple sclerosis. Its services include advocacy and HIV/AIDS prevention education.

Whitney Young Child Development Center, Inc.
100 Whitney Young Circle
San Francisco, CA 94124
415-821-7550 (Main)
415-821-6062 (Fax)

The Whitney Young Child Development Center provides a therapeutic program for severely handicapped children with physical or learning disabilities, including AIDS. The center works with families of disabled children who are preparing to enter the public school system, offers an extended-day program for young handicapped students, and provides 24-hour services for disabled children whose parents work swing or graveyard shifts.

DISTRICT OF COLUMBIA

Gallaudet University Mental Health Center
Mental Center
Room 3202
Kellogg Conference Center
800 Florida Avenue, NE
Washington, DC 20002-3695
202-651-6080 (Voice/TTD)
202-651-6085 (Fax)
http://gallaudet.edu~mhcweb (Web Site)

The Gallaudet University’s Mental Health Center offers counseling, assessment, and other mental health services to the deaf and hard-of-hearing and to their families.

Office of Information Referrals and Records (OIRR) District of Columbia Commission on Social Services Rehabilitation Services Administration
810 First Street, NE, Ninth Floor
Washington, DC 20002
202-442-8400 (Main)
202-442-8720 (Fax)

The OIRR provides vocational rehabilitation services to eligible physically and mentally disabled individuals, including persons living with HIV/AIDS, to enable them to return to gainful employment.

FLORIDA

Columbia Home Care Olsten Health Services
5001 West Cypress Street
Tampa, FL 33607
813-289-1696 (Main)
813-288-1930 (Fax)

Columbia Home Care provides comprehensive home healthcare to people who are temporarily or permanently disabled and provides medical and practical support to people living with HIV/ AIDS. Other services include AIDS treatment, infusion therapy, referrals, and occupational, physical, and speech therapy.

U.S. Department of Veterans Affairs Jacksonville Veterans Center
300 East State Street
Jackson, FL 32202
904-232-3621 (Main)
904-232-3167 (Fax)

The U.S. Department of Veterans Affairs, Veter-ans Center provides information, counseling, job training, and referrals. It primarily serves Vietnam veterans and any war-zone veteran, including persons with physical and mental disabilities who are living with HIV/AIDS.

MAINE

Maine Developmental Disabilities Council
139 State House Station
Augusta, ME 04333-0139
207-287-4213 (Main)
207-287-8001 (Fax)
peter.stowell@mmp.org (E-mail)

The Maine Developmental Disabilities Council provides brochures, workshops, and confer-ences for persons with disabilities, including those living with HIV/AIDS, and their families. It offers financial support to organizations working with disabled persons.

MARYLAND

Deaf AIDS Project Family Service Foundation
2310 North Charles Street
Baltimore, MD 21218
410-889-8040 (Voice)
410-889-8077 (TTY)
410-467-9239 (Fax)

The Deaf AIDS Project helps deaf and hearing-impaired people living with HIV/AIDS obtain counseling, referrals, daily living assistance, HIV/ AIDS prevention education, and interpreting or assistive devices.

NEW YORK

New York Society for the Deaf
Ryan White Case Management Program

817 Broadway, Seventh Floor
New York, NY 10003
212-777-3900 (Voice, TTY)
212-777-5740 (Fax)
http://www.nysd.org (Web Site)

The Ryan White Case Management Program of the New York Society for the Deaf was established to ensure that people who are deaf or deaf-blind and who are living with AIDS receive the same quality and range of services as other people with HIV/AIDS.

OHIO

United Way Services of Cuyahoga County First Call for Help
1331 Euclid Avenue
Cleveland, OH 44115
216-436-2000 (Main)
216-436-2000 (TTY/TTD)
216-436-2252 (Fax)

First Call for Help of the United Way Services of Cuyahoga County provides substance abuse counseling and referral services for disabled people living with HIV/AIDS.

OKLAHOMA

Central Oklahoma Transportation and Parking Authority Metro Transit
300 SW Seventh Street
Oklahoma City, OK 73109
405-297-2601 (Main)
405-297-2602 (TTY/TTD)
405-297-2111 (Fax)
http://www.okc-cityhall/transit (Web Site)

Metro Transit of the Central Oklahoma Transportation and Parking Authority provides transportation services for eligible persons living with physical disabilities and HIV/AIDS.

PENNSYLVANIA

Community College of Allegheny County – South Campus Health and Supportive Services
1750 Clairton Road
West Mifflin, PA 15122
412-469-6215 (Main)
412-469-6371 (Fax)

The Community College of Allegheny County offers a basic HIV/AIDS infection course and a counseling program. Programs for the general student body and disabled students are held at freshman orientation, in the college health center, and at health fairs.

SOUTH CAROLINA

Catholic Charities – Midlands Office
1012 Taylor Street
Columbia, SC 29201 (Street Address)
P.O. Box 7245
Columbia, SC 29201 (Mailing Address)
803-254-9776 (Main)
803-252-7605 (Fax)

The Midlands Office of the Catholic Charities educates pastors and parishioners about HIV/ AIDS and how they can help. It offers disabled people who have HIV/AIDS help with utilities, rent, and prescriptions.

VIRGINIA

Jewish Social Service Agency (JSAA) of Metropolitan Washington Northern Virginia Office
7345 McWhorter Place, Suite 100
Annandale, VA 22003
703-750-5400 (Main)
703-750-2328 (Fax)

JSSA Northern Virginia Office provides professional counseling, referrals, and other social services to people with disabilities, including those who also have HIV/AIDS.

WASHINGTON

Catholic Community Services
1225 West Smith Street
Kent, WA 98035 (Street Address)
P.O. Box 398 Kent, WA 98035 (Mailing Address)
800-722-3479 (Toll-Free, English)
253-850-2528 (Main)
253-850-6592 (Fax)

Catholic Community Services provides non-medical home care and transportation to dis-abled persons, including people living with HIV/ AIDS. Home healthcare training is provided for staff and families. Referrals to financial aid services and mental health and bereavement counseling are also available.

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