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NPIN Web Features
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Persons with Disabilities (Persons with Disabilities Home) HIV/AIDS
& Persons with Physical and Mental Disabilities:
A Guide to Selected Resources, April 2000 The listings in this section are drawn from the NPIN Resources and Services Database and include organizations that provide information and services on HIV/AIDS to people with mental and physical disabilities. The national organizations listed here analyze policy, maintain clearinghouses, and advocate on behalf of people with disabilities. Many of these organizations are affiliated with or are collaborating with state, local, and regional organizations that provide services directly to this community. The national organizations are listed first, followed by state, regional, and local organizations, which are divided by state and listed alphabetically. This list is not comprehensive. For names and contact information for additional organizations that provide information and services to persons with disabilities, contact NPIN at 800-458-5231 (800-243-7012 TTY), or visit the NPIN Web site at http://www.cdcnpin.org and search our Resources and Services Database. National and International Organizations American Printing House for the Blind (APH) APH provides materials for persons who are blind, including textbooks and magazines in Braille and large print. APH also records books and produces educational tools such as Braille writing and embossing equipment, computer software and hardware, and low-vision aids. Association for Retarded Citizens United States (ARC) ARC educates mentally retarded adults and their parents and peers about HIV/AIDS prevention and provides prevention education and policy training to healthcare workers who serve men-tally retarded people. ARC also produces and distributes educational resources for adults with mental retardation and for HIV/AIDS service providers. Books Aloud, Inc. CDC National AIDS Hotline TTY Service The CDC National AIDS Hotline is a toll-free service available to people with hearing disabilities 24 hours a day, seven days a week throughout the United States and its territories. The Hotline provides callers with confidential information, education, and referrals related to AIDS and HIV infection. Specially trained staff are available to answer calls through a machine for the deaf. The Hemophilia AIDS Network/National Hemophilia Foundation The Hemophilia AIDS Network/National Hemophilia Foundation operates as a clearing-house for information on transfusion-related AIDS and serves as a coalition for state hemophilia foundations. This organization also provides brochures and other educational materials. Lambda Legal Defense and Education Fund Lambda Legal Defense and Education Fund is a national organization committed to achieving full recognition of the civil rights of lesbians, gay men, and people with HIV/AIDS through impact litigation, education, and public policy work. National Alliance for the Visually Handicapped (NAVH) NAVH offers services for persons with low vision. Large print publications are available for persons with low vision, professionals, paraprofessionals, and families. National Association of Protection and Advocacy Systems (NAPAS)
Since 1989, NAPAS has served as a clearinghouse on AIDS for its 80 member agencies representing physically and mentally disabled people nationwide. The project strives to develop links and information exchanges between state protection and advocacy systems and community-based AIDS organizations. National Association of the Deaf (NAD) NAD provides advocacy and education about issues impacting the lives of deaf and hard-of-hearing persons. National Information Center on Deafness (NICD) NICD collects, develops, and shares information on all aspects of hearing loss and deafness, and provides fact sheets and HIV prevention education for deaf people. National Institute of Child Health and Human Development (NICHD)
The NICHD conducts research projects concerning HIV/AIDS. Topics of study include the natural history of the HIV virus, pharmaceutical possibilities, and new techniques for early diagnosis of HIV infection in infants and children. National Library Service for the Blind and Physically Handicapped
This service provides, free of charge, recorded and Braille materials to persons with visual impairments. They also work with regional libraries to provide for blind people. National Multiple Sclerosis Society The National Multiple Sclerosis Society is dedicated to ending the devastating effects of multiple sclerosis. President’s Committee on Employment of People with Disabilities
The President’s Committee is a small federal agency that searches for solutions to obstacles confronting the employment of people with disabilities. Recording for the Blind (RFB) RFB provides recorded textbooks, library services, and other educational services to individuals who cannot read regular print because of a visual, perceptual, or physical disability. Sexuality Information and Education Council of the U.S. (SIECUS)
SIECUS provides sexuality information to healthcare professionals, educators, policy makers, students, and the general public. Under a federal grant from the Centers for Disease Control and Prevention (CDC), SIECUS initiated its National AIDS Education and Information Program. In 1995 SIECUS produced an anno-tated bibliography titled Sexuality and Disability, available through their Web Site. United States Equal Employment Opportunity Commission (EEOC) The EEOC promotes equal opportunity in em-ployment by enforcing federal civil rights employ-ment laws through administrative and judicial actions, as well as education and technical assistance. State, Regional, and Local Organizations CALIFORNIA Adult Independence Development Center (AIDC) The AIDC provides support for the physically disabled, including those with AIDS, to help them develop their personal skills and independence. Services include vocational and peer counseling, attendant care, and the development of leisure skills. AIDS Education Services for the Deaf (AESD) A project of the Greater Los Angeles Council on Deafness, AESD was created by deaf professionals to provide quality education and HIV-related services to the deaf. AESD also provides brochures, fact sheets, and videos. Association of Regional Center Agencies (ARCA) ARCA is composed of 21 regional centers for the developmentally disabled in California. Its AIDS Education Project has developed a curricu-lum and materials for providing AIDS education to professional staff, service providers, and parents of people with developmental disabilities. Deaf AIDS Project The USCF Deaf AIDS Project helps deaf and hearing-impaired people with HIV/AIDS to obtain services such as counseling, referrals, living support, interpreting, assistive devices, and HIV/ AIDS prevention education. Protection and Advocacy, Inc. (PAI) PAI provides legal assistance, litigation support, case management, and referral services to people living with AIDS who have mental or developmental disabilities. The organization also provides outreach, training, materials, and education. Redwood Coast Regional Center (RCRC) RCRC provides services to the developmentally disabled, including HIV/AIDS education and training in community and residential settings, safer sex education, and developmentally appropriate AIDS education. United Cerebral Palsy Association of Santa Clara/ San Mateo Counties The United Cerebral Palsy Association of Santa Clara/San Mateo Counties serves people with cerebral palsy and those with related conditions, including autism, epilepsy, muscular dystrophy, spina bifida, and multiple sclerosis. Its services include advocacy and HIV/AIDS prevention education. Whitney Young Child Development Center, Inc. The Whitney Young Child Development Center provides a therapeutic program for severely handicapped children with physical or learning disabilities, including AIDS. The center works with families of disabled children who are preparing to enter the public school system, offers an extended-day program for young handicapped students, and provides 24-hour services for disabled children whose parents work swing or graveyard shifts. DISTRICT OF COLUMBIA Gallaudet University Mental Health Center The Gallaudet University’s Mental Health Center offers counseling, assessment, and other mental health services to the deaf and hard-of-hearing and to their families. Office of Information Referrals and Records (OIRR) District of
Columbia Commission on Social Services Rehabilitation Services Administration
The OIRR provides vocational rehabilitation services to eligible physically and mentally disabled individuals, including persons living with HIV/AIDS, to enable them to return to gainful employment. FLORIDA Columbia Home Care Olsten Health Services Columbia Home Care provides comprehensive home healthcare to people who are temporarily or permanently disabled and provides medical and practical support to people living with HIV/ AIDS. Other services include AIDS treatment, infusion therapy, referrals, and occupational, physical, and speech therapy. U.S. Department of Veterans Affairs Jacksonville Veterans Center
The U.S. Department of Veterans Affairs, Veter-ans Center provides information, counseling, job training, and referrals. It primarily serves Vietnam veterans and any war-zone veteran, including persons with physical and mental disabilities who are living with HIV/AIDS. MAINE Maine Developmental Disabilities Council The Maine Developmental Disabilities Council provides brochures, workshops, and confer-ences for persons with disabilities, including those living with HIV/AIDS, and their families. It offers financial support to organizations working with disabled persons. MARYLAND Deaf AIDS Project Family Service Foundation The Deaf AIDS Project helps deaf and hearing-impaired people living with HIV/AIDS obtain counseling, referrals, daily living assistance, HIV/ AIDS prevention education, and interpreting or assistive devices. NEW YORK New York Society for the Deaf The Ryan White Case Management Program of the New York Society for the Deaf was established to ensure that people who are deaf or deaf-blind and who are living with AIDS receive the same quality and range of services as other people with HIV/AIDS. OHIO United Way Services of Cuyahoga County First Call for Help First Call for Help of the United Way Services of Cuyahoga County provides substance abuse counseling and referral services for disabled people living with HIV/AIDS. OKLAHOMA Central Oklahoma Transportation and Parking Authority Metro Transit
Metro Transit of the Central Oklahoma Transportation and Parking Authority provides transportation services for eligible persons living with physical disabilities and HIV/AIDS. PENNSYLVANIA Community College of Allegheny County – South Campus Health and
Supportive Services The Community College of Allegheny County offers a basic HIV/AIDS infection course and a counseling program. Programs for the general student body and disabled students are held at freshman orientation, in the college health center, and at health fairs. SOUTH CAROLINA Catholic Charities – Midlands Office The Midlands Office of the Catholic Charities educates pastors and parishioners about HIV/ AIDS and how they can help. It offers disabled people who have HIV/AIDS help with utilities, rent, and prescriptions. VIRGINIA Jewish Social Service Agency (JSAA) of Metropolitan Washington
Northern Virginia Office JSSA Northern Virginia Office provides professional counseling, referrals, and other social services to people with disabilities, including those who also have HIV/AIDS. WASHINGTON Catholic Community Services Catholic Community Services provides non-medical home care and transportation to dis-abled persons, including people living with HIV/ AIDS. Home healthcare training is provided for staff and families. Referrals to financial aid services and mental health and bereavement counseling are also available. |
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