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Persons with Disabilities (Persons with Disabilities Home)

HIV/AIDS & Persons with Physical and Mental Disabilities: A Guide to Selected Resources, April 2000
Table of Contents

EDUCATIONAL MATERIALS

The educational materials listed in this section are drawn from the National Prevention Information Network (NPIN) Educational Materials Database and the Combined Health Information Database (CHID), a database produced by health-related agencies of the federal government. Materials listed include fact sheets, guides, reports, and videos on HIV/AIDS and address issues relating to persons with mental and physical disabilities.

Educational materials are listed alphabetically and grouped by topic – blindness, deafness, developmental disabilities, hemophilia, and mental disabilities. For a more extensive list of educational materials on HIV/AIDS contact NPIN at 800-458-5231 (800-243-7012 TTY) or visit the NPIN Web site at http://www.cdcnpin.org and search our Educational Materials Database. Materials can also be located through CHID at http://chid.nih.gov.

Blindness and Visual Impairment

Radio Spots & Calypsoes for Public Education
This audiotape, targeted to a West Indian audience, consists of six tapings of radio spots for HIV education and prevention, performed by a storyteller/comedian (Caribbean Epidemiology Centre CAREC, 1994). To order, contact Caribbean Epidemiology Centre CAREC, P.O. Box 164, Port of Spain, Trinidad & Tabago; 809-622-4261.

A Rap Opera
This is the audiotape and videotape of an amateur production of a rap music opera. Through dialogue, singing, and dance, performers tell the story of a popular, sexually active male student named C.C., who is HIV positive (Black Nurses Association, Inc., Mahoning-Trumball Council, 1995). To order, contact Black Nurses Association, Inc., Mahoning-Trumbull Council, 26 South Phelps, Youngstown, OH 44503; 216-742-8886.

Understanding AIDS
This brochure, available in Braille, provides basic information about HIV/AIDS (CDC National Prevention Information Network, 1988). To order contact CDC National Prevention Information Network, P.O. Box 6003, Rockville, MD 20849- 6003, 800-458-5231. Request inventory #D040 (Braille).

Deafness and Hearing Impairment

Age of AIDS
This video provides a general overview of the history of the epidemic and features interviews with Elizabeth Aviles, a member of the board of the National Coalition on Deafness and AIDS, and Sandra Egan, coordinator of Deaf Access Services at the Whitman-Walker Clinic in Washington, D.C. The video is captioned and signed (Galluadet University, 1991). To order, contact Gallaudet University, Department of Television, Photography, and Educational Technology, 800 Florida Avenue, NE, Washington, DC 20002; 202-651-5115.

AIDS/HIV: Information Sources for People Who Are Deaf or Have Hearing Impairments
This bibliography includes the results of a literature search from the Deafness and Communication Disorders subfile of the Combined Health Information Database (National Institutes on Deafness and Other Communication Disorders Information Clearinghouse, 1997). To order, contact National Institute on Deafness and Other Communication Disorders Information Clearinghouse, One Communication Avenue, Bethesda, MD 20892- 3456; 800-241-1044.

AIDS: Ignorance Is NOT Bliss
This article discusses problems encountered by deaf persons after they contract AIDS, activists in the deaf community and their work in AIDS awareness, and funding for deaf education and activism (Van Blema, D. Hearing Health 11(2): 18-21, 30, February-March 1995.) To order, contact Voice International Publications, Inc., P.O. Drawer V, Ingleside, TX 78362-0500; voice/ TTY 512-776-7240; fax 512-776-3278; http://www.hearinghealthmag.com.

AIDS in the Deaf Community-Deaf in the AIDS Community: Creating Partnerships
This video helps care providers understand the concerns of deaf people who are HIV-positive, focusing on how to provide services to deaf people with AIDS. Voice-over, closed captioning, and sign language are provided throughout the program (UCSF Center on Deafness, 1996). To order, contact Sign Enhances, Inc., Orders Department, 15159 Technology Drive, Eden Paririe, MN 53344-2277; voice/TTY 800-767- 4461; fax 503-304-1063; e-mail sign@signenhancers.com; http://www.teleport.com/~sign.

AIDS Project for Deaf and Hard-of-Hearing
This fact sheet describes the AIDS Project for Deaf and Hard-of-Hearing people (DEAF Inc., 1995). To order, contact D.E.A.F., Inc., Frederick C. Schreiber Center, 215 Brighton Avenue, Allston, MA 02134; voice/TTY 617-254-4041; fax 617-254-7091.

AIDS: What Mean? AIDS: How Stop? Learn About AIDS
This brochure reviews the basics of AIDS prevention for deaf people. Written in a transliterated form of English, with sentence structure similar to sign language, the brochure provides information on HIV/AIDS, who gets the disease, and how to prevent AIDS. Most concepts are illustrated with simple line drawings (Texas Department of Health, 1991). To order, contact Texas Department of Health, Literature and Forms, 1100 West 49 th Street, Austin, TX 78756; voice 800-299-AIDS or 512-458-7111; TTY 800-252-8012.

CDC National AIDS Hotline TTY Service. Many People Have Questions About HIV and AIDS and Don’t Know Where to Get Answers
This brochure provides information on the CDC National AIDS Hotline TTY Service for persons who are deaf or hearing impaired (CDC AIDS Hotline TTY Service). To order, contact American Social Health Association, P.O. Box 13827, Research Triangle Park, NC 27709; voice 800- 342-AIDS; TTY 800-243-7889 or 800-344-7432 (Spanish).

Communication Disorders and HIV: A Guide for Audiologists and Speech Language Pathologists
This brochure for audiologists and speech language pathologists summarizes the interplay of HIV infection and communication disorders (American Speech Language-Hearing Association, 1998). To order, contact the American Speech-Language Hearing Association, 10801 Rockville Pike, Rockville, MD 20852-3279; voice 800-498-2071 or 301-897- 5700; TTY 301-897-0157; fax 301-571-0457; http://www.asha.org.

Deaf AIDS Education
This fact sheet describes communication barriers to educating deaf individuals about HIV/ AIDS and presents guidelines for interpreters regarding confidentiality and accurate translation (U.S. Conference of Mayors, 1989). To order, contact the U.S. Conference of Mayors, Health Programs, 1620 I Street, NW, Washington, DC 20006; 202-293-7330.

Facing AIDS: How Prevalent Is This Disease in the Deaf Population?
This article discusses the prevalence of AIDS in the deaf population and notes that the deaf population lags behind the hearing population in awareness and knowledge of HIV (Bares, B. Hearing Health 8(2); 12-16, February-March 1992). To order, contact Voice International Publications, Inc., P.O. Drawer V, Ingleside, TX 78362-0500, voice/TTY 512-776-7240; fax 512- 776-3278.

Facing AIDS: Testing
This article explains that many deaf people are afraid of the HIV test either because they do not understand the test or because they are afraid of the results. It discusses testing procedures for HIV/AIDS and who should be tested (Bares, B. Hearing Health. 8(3): 20-22. April-May 1992). To order, contact Voice International Publications, Inc., P.O. Drawer V, Ingleside, TX 78362-0500; voice/TTY 512-776-7240; fax 512-776-3278; http://www.hearinghealth.com.

HIV and AIDS: A Prevention Video for Deaf Students
This video provides HIV-related information to deaf students whose primary language is American Sign Language. English voice-over and closed captions are also provided for hearing and hard-of-hearing audiences (National Technical Institute for the Deaf, 1995). To order, contact American Foundation for AIDS Research, Program Office, 120 Wall Street, 13 th Floor, New York, NY 10005; 212-806-1600; fax 212-806-1601.

Just Say kNOw to AIDS
This video, designed for hearing-impaired adolescents, provides an introduction to AIDS. The videotape is available in open-captioned format (Health Education Learning Programs, 1994). To order, contact Health Education Learning Programs, 18400-A North 19 th Avenue, Phoenix, AZ 85023; 602-943-4357; fax 602-840-8180.

Living with AIDS
This video presents basic information about AIDS for deaf viewers. People interviewed include former Surgeon General C. Everett Koop; Holly Bell from the Gallaudet University AIDS Task Force; Mike Felts, a deaf AIDS activist; staff of the Whitman-Walker Clinic, including Ernie Hoffman with the Buddies program; and Sam Edwards, a deaf dancer with AIDS (Gallaudet University, 1987). To order, contact Department of Television, Film, and Photography, Gallaudet University, 800 Florida Avenue, NE Washington, DC 20002-3695; voice/TTY 202-651-5115; fax 202-651-5124.

New York Society for the Deaf: Ryan White Case Management Program
This brochure describes the Ryan White Case Management Program of the New York Society for the Deaf (NYSD), a program established to ensure that people who are deaf or deaf-blind and who have AIDS receive the same quality and range of services as all other people who are affected by HIV/AIDS (NYSD). To order, contact New York Society for the Deaf, 817 Broadway, Seventh Floor, New York, NY 10003; 800-420-1220, fax 212-777-5740.

Power Surge: Hot Videos for Teens (Catalog and Price List)
This catalog lists the Power Surge videos, a series of “rockumentaries” with graphics and rock music, designed to interest deaf teenage viewers in important issues, including AIDS and STDs (Media International). To order, contact Power Surge, Media International, 5900 San Fernando Road, Glendale, CA 91202; 800-477- 7575.

What Are Some of the Difficulties Faced by Deaf People in Mainstreamed Support Groups?
This article explores some of the difficulties faced by deaf people in mainstreamed support groups, including those in peer-support or therapy groups for battered women, survivors of sexual abuse, substance abusers, and people with HIV/AIDS (Deaf Life, 1996). To order, con-tact Deaf Life, MSM Productions, Ltd., 1095 Meigs Street, Rochester, NY 14620; TTY 716- 442-6370; fax 716-442-6371.

Developmental Disabilities

AIDS: Training People with Developmental Disabilities to Better Protect Themselves
This video, in Spanish, teaches mentally retarded young adults about safe sex and provides basic information about preventing HIV infection and AIDS (Young Adult Institute, 1991). To order, contact Young Adult Institute, AIDS Professional Education Program, 460 West 34 th Street, New York, NY 10001-2382; 212-563- 7474.

Beverly Cleans Up Blood Safely
This brochure uses illustrations to explain how to clean up blood safely and why cleaning up blood safely can prevent HIV infection. Written for a low literacy audience, the brochure is appropriate for mentally retarded and developmentally delayed people (Oregon Health Sciences University, 1990). To order, contact Oregon Health Sciences University, Child Development and Rehabilitation Center, P.O. Box 574, Portland, OR 97207-0574; 503-494-7522.

Circles: Safer Ways
These videos are part of the Circles Series of audiovisual aids, developed to teach mentally handicapped individuals about appropriate social behavior and communicable diseases such as AIDS (James Stanfield and Company, 1988). To order, contact the James Stanfield Company at 800-421-6534.

The Circle Series
This fact sheet describes the Circle Series, an instructional aid that includes information about preventing the spread of STDs and HIV/AIDS appropriate for mentally retarded and develop-mentally delayed people (Moonstone Group, 1993). To order, contact James Stanfield Company at 800-421-6534.

Clear and Simple: Developing Effective Print Materials for Low-Literate Readers
This guide outlines how to develop publications for people with limited literacy skills and offers a bibliography of low-literacy publications, software, and organizational resources to aid organizations developing educational materials related to HIV/AIDS, STDs, and TB for mentally retarded and developmentally delayed people (U.S. Department of Health and Human Services, 1994). To order, contact the National Cancer Institute, 6130 Executive Boulevard, Room 843, Rockville, MD 20852; 800-422- 6237; NIH publication no. 95-3594.

A Comprehensive AIDS Staff Training Program Model
This technical report summarizes the Young Adult Institute’s program of AIDS staff training, which teaches staff why mentally retarded and developmentally delayed individuals are vulnerable to contracting HIV infection (American Association of University Affiliated Programs for Persons with Developmental Disabilities, 1992). To order, contact American Association of University Affiliated Programs for Persons with Developmental Disabilities, 8630 Fenton Street, Suite 410, Silver Spring, MD 20910;
301-588-8252.

Developmental Disabilities and HIV Infection: A Symposium on Issues Public Policy.
This special journal issue presents the proceedings from a conference on developmental disabilities and infection with HIV (American Association on Mental Retardation, 1989). To order, contact the American Association on Mental Retardation, 1719 Kalorama Road, NW, Washington, DC 20009; 301-604-1340.

The Drop-In Group: An AIDS Risk and Prevention Program for the Mentally Ill
This video and its training guide are intended to equip clinicians and mental health professionals with the information needed to provide an educa-tional program on HIV/AIDS for the mentally ill (Playback, Inc., 1991). To order, contact Fanlight Productions, 4196 Washington Street, Suite 2, Boston, MA 03121; 800-937-4113, 617-469-4999.

Guidelines: Writing for Adults With Limited Reading Skills
This manual contains guidelines for preparing written material for adults with limited reading skills, including adults with mental retardation or developmental disabilities (Food and Nutrition Information Center, 1988). To order, contact U.S. Department of Agriculture, National Agriculture Library, Food and Nutrition Information Center, 10301 Baltimore Avenue, Room 304, Beltsville, MD 20705; 301-504-5719.

HIV Prevention for People with Mental Illness and People with Developmental Disabilities: A Training Manual for Service Providers
This manual trains service providers on HIV prevention education for the mentally ill and mentally retarded. Negotiation skills, victimization, and principles of learning among these populations are among the topics discussed. (Intercommunity Action, 1991). To order, contact Intercommunity Action, AIDS Education Project, 6122 Ridge Avenue, Philadelphia, PA 19128; 215-487-0906.

Learning AIDS: A Special Report on Readability, Literacy, and the HIV Epidemic; 1991 Supplement
This report presents the results of a study analyzing the readability of AIDS educational brochures and pamphlets. It determines the materials’ accessibility to low-literacy popula-tions, such as mentally retarded and develop-mentally delayed people (Project Hope, 1991). To order, contact Project Hope, Center for Health Affairs, 7500 Old Georgetown Road, Suite 600, Bethesda, MD 20814; 301-656-7401.

SAFE: Stopping AIDS Through Functional Education; A Curriculum and Instructional Materials on Preventing HIV/AIDS, for People Who Have Developmental Disabilities or Other Learning Problems.
This teaching guide presents a comprehensive curriculum package designed to educate people with developmental disabilities about HIV infection and prevention (Oregon Health Sciences University, 1990). To order, contact Oregon Health Sciences University, Child Development and Rehabilitation Center, P.O. Box 574, Portland, OR 97207-0574; 503-494- 7522 or Publications, National Headquarters of the ARC, P.O. Box 1047, Arlington, TX 76004, 817-261-6003.

Strategies for Implementing AIDS/HIV Policy Guidelines in Developmental and Mental Health Services: A Background and Checklist for Advocates
This report presents background information about the theory, law, and policy relating to transmission of HIV in adults with mental disabilities (National Association of Protection and Advocacy Systems (NAPAS), 1990). To order, contact NAPAS, 900 Second Street, NE, Washington, DC 20002; 202-408-9514.

Teaching Patients with Low Literacy Skills
This manual provides ideas, methods, and examples for health educators on how to simplify health instruction to be appropriate for mentally retarded and developmentally delayed patients (Lippincott-Raven Publishers, 1996). To order, contact Lippincott-Raven Publishers, 12107 Insurance Way, Hagerstown, MD 21740.

Understanding AIDS: An Educational Booklet for Persons with Disabilities, Their Parents, Friends and Caregivers
This study guide encourages discussion about HIV with mentally retarded individuals. It covers subjects such as HIV transmission, risky behavior, condoms, and safer sex (Mary Ann Carmody, 1990), To order, contact Mary Ann Carmody, 6121 Nevada Avenue, NW, Washington, DC 20015; 202-364-5303.

What Are Friends For? HIV Safe Coloring Book
This coloring book briefly describes HIV/AIDS so that adults with low reading skills as well as younger readers can understand (Creative License Studio, Inc., 1990). To order, contact Creative License Studio, Inc., P.O. Box 10694, Chicago, IL 60610; 773-338-5809.

What You NO Can Save Your Life
This video uses the Hatsey Pudding Puppet Company to demonstrate safer sex, including how to avoid becoming infected with HIV, to developmentally disabled adults (American Red Cross, Knox County Indiana Chapter, 1992). To order, contact American Red Cross, Knox County Chapter, 214 Buntin Street, Vincennes, IN 47591; 812-882-2204.

You Can’t Get AIDS by Shaking Hands
This illustrated brochure, appropriate for mentally retarded and developmentally delayed people, explains that HIV/AIDS cannot be transmitted by casual contact. (Oregon Health Sciences University, 1990). To order, contact Oregon Health Services University, Child Development and Rehabilitation Center, P.O. Box 574, Portland, OR 97207-0574; 503-494-7522.

Young Adult Institute’s Comprehensive AIDS Staff Training Program
This report describes a comprehensive model of AIDS training developed for a staff serving people with mental retardation and developmental disabilities (Young Adult Institute, 1993). To order, contact Young Adult Institute, AIDS Professional Education Program, 460 W 34 th Street, New York, NY 10001-2382; 212-563- 7474.

Hemophilia

Coping with Loss
This brochure discusses the unique difficulties associated with HIV-related deaths, especially those associated with hemophilia (National Hemophilia Foundation, 1990). To order, contact the National Hemophilia Foundation, Hemophilia and AIDS Network for the Dissemination of Information, 116 West 32 nd Street, 11 th Floor, New York, NY 10001; 800-42HANDI.

Hemophilia and AIDS: AIDS in the Hemophilia Community
Written for mental health professionals, this paper discusses the impact of AIDS in the hemophiliac community, the psychosocial issues involved, and treatment issues (University of California at San Francisco, 1987). To order, contact University of California San Francisco, AIDS Health Project, P.O. Box 0884, San Francisco, CA 94143-0884; 415-502-4930.

Mental Disabilities

HIV Education for Persons with Mental Disabilities
This report deals with legal, policy, and advocacy issues pertaining to mental health, developmental services, and AIDS (National Association of Protection and Advocacy Systems (NAPAS, 1990). To order, contact NAPAS, 900 Second Street, NE, Washington, DC 20002; 202-408-9514.

Serving People with Psychiatric Disability at Risk for HIV/AIDS – Special Issue
This special issue of the Psychosocial Rehabilitation Journal addresses the needs of people with psychiatric disabilities who are at risk for HIV/AIDS (Boston University, 1994). To order, contact Boston University, Sargent College of Allied Health Professions, Department of Rehabilitation Counseling, International Association of Psychosocial Rehabilitation Services, 940 Commonwealth Avenue West, Boston, MA 02215; 617-353-3549.

Smart Sex, AIDS Prevention
This information package contains the final report of and materials used in a study on the effectiveness of individual versus group AIDS safer sex education for severely mentally ill male inpatients (U.S. Department of Veterans Affairs, 1993). To order, contact U.S. Department of Veterans Affairs, Medical Center, 70 Middleville Road, Northport, NY 11768; 516-261-4400.

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