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Persons
with Disabilities (Persons with
Disabilities Home)
HIV/AIDS
& Persons with Physical and Mental Disabilities:
A Guide to Selected Resources, April 2000 
Table of Contents
EDUCATIONAL MATERIALS
The educational materials listed in this section are drawn from the National
Prevention Information Network (NPIN) Educational Materials Database and
the Combined Health Information Database (CHID), a database produced by
health-related agencies of the federal government. Materials listed include
fact sheets, guides, reports, and videos on HIV/AIDS and address issues
relating to persons with mental and physical disabilities.
Educational materials are listed alphabetically and grouped by topic
– blindness, deafness, developmental disabilities, hemophilia, and mental
disabilities. For a more extensive list of educational materials on HIV/AIDS
contact NPIN at 800-458-5231 (800-243-7012 TTY) or visit the NPIN Web
site at http://www.cdcnpin.org and
search our Educational Materials Database. Materials can also be located
through CHID at http://chid.nih.gov.
Blindness
and Visual Impairment
Radio Spots & Calypsoes for Public Education
This audiotape, targeted to a West Indian audience, consists of six tapings
of radio spots for HIV education and prevention, performed by a storyteller/comedian
(Caribbean Epidemiology Centre CAREC, 1994). To order, contact Caribbean
Epidemiology Centre CAREC, P.O. Box 164, Port of Spain, Trinidad & Tabago;
809-622-4261.
A Rap Opera
This is the audiotape and videotape of an amateur production of a rap
music opera. Through dialogue, singing, and dance, performers tell the
story of a popular, sexually active male student named C.C., who is HIV
positive (Black Nurses Association, Inc., Mahoning-Trumball Council, 1995).
To order, contact Black Nurses Association, Inc., Mahoning-Trumbull Council,
26 South Phelps, Youngstown, OH 44503; 216-742-8886.
Understanding AIDS
This brochure, available in Braille, provides basic information about
HIV/AIDS (CDC National Prevention Information Network, 1988). To order
contact CDC National Prevention Information Network, P.O. Box 6003, Rockville,
MD 20849- 6003, 800-458-5231. Request inventory #D040 (Braille).
Deafness
and Hearing Impairment
Age of AIDS
This video provides a general overview of the history of the epidemic
and features interviews with Elizabeth Aviles, a member of the board of
the National Coalition on Deafness and AIDS, and Sandra Egan, coordinator
of Deaf Access Services at the Whitman-Walker Clinic in Washington, D.C.
The video is captioned and signed (Galluadet University, 1991). To order,
contact Gallaudet University, Department of Television, Photography, and
Educational Technology, 800 Florida Avenue, NE, Washington, DC 20002;
202-651-5115.
AIDS/HIV: Information Sources for People Who Are Deaf or Have Hearing
Impairments
This bibliography includes the results of a literature search from the
Deafness and Communication Disorders subfile of the Combined Health Information
Database (National Institutes on Deafness and Other Communication Disorders
Information Clearinghouse, 1997). To order, contact National Institute
on Deafness and Other Communication Disorders Information Clearinghouse,
One Communication Avenue, Bethesda, MD 20892- 3456; 800-241-1044.
AIDS: Ignorance Is NOT Bliss
This article discusses problems encountered by deaf persons after they
contract AIDS, activists in the deaf community and their work in AIDS
awareness, and funding for deaf education and activism (Van Blema, D.
Hearing Health 11(2): 18-21, 30, February-March 1995.) To order, contact
Voice International Publications, Inc., P.O. Drawer V, Ingleside, TX 78362-0500;
voice/ TTY 512-776-7240; fax 512-776-3278; http://www.hearinghealthmag.com.
AIDS in the Deaf Community-Deaf in the AIDS Community: Creating
Partnerships
This video helps care providers understand the concerns of deaf people
who are HIV-positive, focusing on how to provide services to deaf people
with AIDS. Voice-over, closed captioning, and sign language are provided
throughout the program (UCSF Center on Deafness, 1996). To order, contact
Sign Enhances, Inc., Orders Department, 15159 Technology Drive, Eden Paririe,
MN 53344-2277; voice/TTY 800-767- 4461; fax 503-304-1063; e-mail sign@signenhancers.com;
http://www.teleport.com/~sign.
AIDS Project for Deaf and Hard-of-Hearing
This fact sheet describes the AIDS Project for Deaf and Hard-of-Hearing
people (DEAF Inc., 1995). To order, contact D.E.A.F., Inc., Frederick
C. Schreiber Center, 215 Brighton Avenue, Allston, MA 02134; voice/TTY
617-254-4041; fax 617-254-7091.
AIDS: What Mean? AIDS: How Stop? Learn About AIDS
This brochure reviews the basics of AIDS prevention for deaf people. Written
in a transliterated form of English, with sentence structure similar to
sign language, the brochure provides information on HIV/AIDS, who gets
the disease, and how to prevent AIDS. Most concepts are illustrated with
simple line drawings (Texas Department of Health, 1991). To order, contact
Texas Department of Health, Literature and Forms, 1100 West 49 th Street,
Austin, TX 78756; voice 800-299-AIDS or 512-458-7111; TTY 800-252-8012.
CDC National AIDS Hotline TTY Service. Many People Have Questions
About HIV and AIDS and Don’t Know Where to Get Answers
This brochure provides information on the CDC National AIDS Hotline TTY
Service for persons who are deaf or hearing impaired (CDC AIDS Hotline
TTY Service). To order, contact American Social Health Association, P.O.
Box 13827, Research Triangle Park, NC 27709; voice 800- 342-AIDS; TTY
800-243-7889 or 800-344-7432 (Spanish).
Communication Disorders and HIV: A Guide for Audiologists and Speech
Language Pathologists
This brochure for audiologists and speech language pathologists summarizes
the interplay of HIV infection and communication disorders (American Speech
Language-Hearing Association, 1998). To order, contact the American Speech-Language
Hearing Association, 10801 Rockville Pike, Rockville, MD 20852-3279; voice
800-498-2071 or 301-897- 5700; TTY 301-897-0157; fax 301-571-0457; http://www.asha.org.
Deaf AIDS Education
This fact sheet describes communication barriers to educating deaf individuals
about HIV/ AIDS and presents guidelines for interpreters regarding confidentiality
and accurate translation (U.S. Conference of Mayors, 1989). To order,
contact the U.S. Conference of Mayors, Health Programs, 1620 I Street,
NW, Washington, DC 20006; 202-293-7330.
Facing AIDS: How Prevalent Is This Disease in the Deaf Population?
This article discusses the prevalence of AIDS in the deaf population and
notes that the deaf population lags behind the hearing population in awareness
and knowledge of HIV (Bares, B. Hearing Health 8(2); 12-16, February-March
1992). To order, contact Voice International Publications, Inc., P.O.
Drawer V, Ingleside, TX 78362-0500, voice/TTY 512-776-7240; fax 512- 776-3278.
Facing AIDS: Testing
This article explains that many deaf people are afraid of the HIV test
either because they do not understand the test or because they are afraid
of the results. It discusses testing procedures for HIV/AIDS and who should
be tested (Bares, B. Hearing Health. 8(3): 20-22. April-May 1992). To
order, contact Voice International Publications, Inc., P.O. Drawer V,
Ingleside, TX 78362-0500; voice/TTY 512-776-7240; fax 512-776-3278; http://www.hearinghealth.com.
HIV and AIDS: A Prevention Video for Deaf Students
This video provides HIV-related information to deaf students whose primary
language is American Sign Language. English voice-over and closed captions
are also provided for hearing and hard-of-hearing audiences (National
Technical Institute for the Deaf, 1995). To order, contact American Foundation
for AIDS Research, Program Office, 120 Wall Street, 13 th Floor, New York,
NY 10005; 212-806-1600; fax 212-806-1601.
Just Say kNOw to AIDS
This video, designed for hearing-impaired adolescents, provides an introduction
to AIDS. The videotape is available in open-captioned format (Health Education
Learning Programs, 1994). To order, contact Health Education Learning
Programs, 18400-A North 19 th Avenue, Phoenix, AZ 85023; 602-943-4357;
fax 602-840-8180.
Living with AIDS
This video presents basic information about AIDS for deaf viewers. People
interviewed include former Surgeon General C. Everett Koop; Holly Bell
from the Gallaudet University AIDS Task Force; Mike Felts, a deaf AIDS
activist; staff of the Whitman-Walker Clinic, including Ernie Hoffman
with the Buddies program; and Sam Edwards, a deaf dancer with AIDS (Gallaudet
University, 1987). To order, contact Department of Television, Film, and
Photography, Gallaudet University, 800 Florida Avenue, NE Washington,
DC 20002-3695; voice/TTY 202-651-5115; fax 202-651-5124.
New York Society for the Deaf: Ryan White Case Management Program
This brochure describes the Ryan White Case Management Program of the
New York Society for the Deaf (NYSD), a program established to ensure
that people who are deaf or deaf-blind and who have AIDS receive the same
quality and range of services as all other people who are affected by
HIV/AIDS (NYSD). To order, contact New York Society for the Deaf, 817
Broadway, Seventh Floor, New York, NY 10003; 800-420-1220, fax 212-777-5740.
Power Surge: Hot Videos for Teens (Catalog and Price List)
This catalog lists the Power Surge videos, a series of “rockumentaries”
with graphics and rock music, designed to interest deaf teenage viewers
in important issues, including AIDS and STDs (Media International). To
order, contact Power Surge, Media International, 5900 San Fernando Road,
Glendale, CA 91202; 800-477- 7575.
What Are Some of the Difficulties Faced by Deaf People in Mainstreamed
Support Groups?
This article explores some of the difficulties faced by deaf people in
mainstreamed support groups, including those in peer-support or therapy
groups for battered women, survivors of sexual abuse, substance abusers,
and people with HIV/AIDS (Deaf Life, 1996). To order, con-tact Deaf Life,
MSM Productions, Ltd., 1095 Meigs Street, Rochester, NY 14620; TTY 716-
442-6370; fax 716-442-6371.
Developmental
Disabilities
AIDS: Training People with Developmental Disabilities to Better
Protect Themselves
This video, in Spanish, teaches mentally retarded young adults about safe
sex and provides basic information about preventing HIV infection and
AIDS (Young Adult Institute, 1991). To order, contact Young Adult Institute,
AIDS Professional Education Program, 460 West 34 th Street, New York,
NY 10001-2382; 212-563- 7474.
Beverly Cleans Up Blood Safely
This brochure uses illustrations to explain how to clean up blood safely
and why cleaning up blood safely can prevent HIV infection. Written for
a low literacy audience, the brochure is appropriate for mentally retarded
and developmentally delayed people (Oregon Health Sciences University,
1990). To order, contact Oregon Health Sciences University, Child Development
and Rehabilitation Center, P.O. Box 574, Portland, OR 97207-0574; 503-494-7522.
Circles: Safer Ways
These videos are part of the Circles Series of audiovisual aids, developed
to teach mentally handicapped individuals about appropriate social behavior
and communicable diseases such as AIDS (James Stanfield and Company, 1988).
To order, contact the James Stanfield Company at 800-421-6534.
The Circle Series
This fact sheet describes the Circle Series, an instructional aid that
includes information about preventing the spread of STDs and HIV/AIDS
appropriate for mentally retarded and develop-mentally delayed people
(Moonstone Group, 1993). To order, contact James Stanfield Company at
800-421-6534.
Clear and Simple: Developing Effective Print Materials for Low-Literate
Readers
This guide outlines how to develop publications for people with limited
literacy skills and offers a bibliography of low-literacy publications,
software, and organizational resources to aid organizations developing
educational materials related to HIV/AIDS, STDs, and TB for mentally retarded
and developmentally delayed people (U.S. Department of Health and Human
Services, 1994). To order, contact the National Cancer Institute, 6130
Executive Boulevard, Room 843, Rockville, MD 20852; 800-422- 6237; NIH
publication no. 95-3594.
A Comprehensive AIDS Staff Training Program Model
This technical report summarizes the Young Adult Institute’s program of
AIDS staff training, which teaches staff why mentally retarded and developmentally
delayed individuals are vulnerable to contracting HIV infection (American
Association of University Affiliated Programs for Persons with Developmental
Disabilities, 1992). To order, contact American Association of University
Affiliated Programs for Persons with Developmental Disabilities, 8630
Fenton Street, Suite 410, Silver Spring, MD 20910;
301-588-8252.
Developmental Disabilities and HIV Infection: A Symposium on Issues
Public Policy.
This special journal issue presents the proceedings from a conference
on developmental disabilities and infection with HIV (American Association
on Mental Retardation, 1989). To order, contact the American Association
on Mental Retardation, 1719 Kalorama Road, NW, Washington, DC 20009; 301-604-1340.
The Drop-In Group: An AIDS Risk and Prevention Program for the
Mentally Ill
This video and its training guide are intended to equip clinicians and
mental health professionals with the information needed to provide an
educa-tional program on HIV/AIDS for the mentally ill (Playback, Inc.,
1991). To order, contact Fanlight Productions, 4196 Washington Street,
Suite 2, Boston, MA 03121; 800-937-4113, 617-469-4999.
Guidelines: Writing for Adults With Limited Reading Skills
This manual contains guidelines for preparing written material for adults
with limited reading skills, including adults with mental retardation
or developmental disabilities (Food and Nutrition Information Center,
1988). To order, contact U.S. Department of Agriculture, National Agriculture
Library, Food and Nutrition Information Center, 10301 Baltimore Avenue,
Room 304, Beltsville, MD 20705; 301-504-5719.
HIV Prevention for People with Mental Illness and People with Developmental
Disabilities: A Training Manual for Service Providers
This manual trains service providers on HIV prevention education for the
mentally ill and mentally retarded. Negotiation skills, victimization,
and principles of learning among these populations are among the topics
discussed. (Intercommunity Action, 1991). To order, contact Intercommunity
Action, AIDS Education Project, 6122 Ridge Avenue, Philadelphia, PA 19128;
215-487-0906.
Learning AIDS: A Special Report on Readability, Literacy, and the
HIV Epidemic; 1991 Supplement
This report presents the results of a study analyzing the readability
of AIDS educational brochures and pamphlets. It determines the materials’
accessibility to low-literacy popula-tions, such as mentally retarded
and develop-mentally delayed people (Project Hope, 1991). To order, contact
Project Hope, Center for Health Affairs, 7500 Old Georgetown Road, Suite
600, Bethesda, MD 20814; 301-656-7401.
SAFE: Stopping AIDS Through Functional Education; A Curriculum
and Instructional Materials on Preventing HIV/AIDS, for People Who Have
Developmental Disabilities or Other Learning Problems.
This teaching guide presents a comprehensive curriculum package designed
to educate people with developmental disabilities about HIV infection
and prevention (Oregon Health Sciences University, 1990). To order, contact
Oregon Health Sciences University, Child Development and Rehabilitation
Center, P.O. Box 574, Portland, OR 97207-0574; 503-494- 7522 or Publications,
National Headquarters of the ARC, P.O. Box 1047, Arlington, TX 76004,
817-261-6003.
Strategies for Implementing AIDS/HIV Policy Guidelines in Developmental
and Mental Health Services: A Background and Checklist for Advocates
This report presents background information about the theory, law, and
policy relating to transmission of HIV in adults with mental disabilities
(National Association of Protection and Advocacy Systems (NAPAS), 1990).
To order, contact NAPAS, 900 Second Street, NE, Washington, DC 20002;
202-408-9514.
Teaching Patients with Low Literacy Skills
This manual provides ideas, methods, and examples for health educators
on how to simplify health instruction to be appropriate for mentally retarded
and developmentally delayed patients (Lippincott-Raven Publishers, 1996).
To order, contact Lippincott-Raven Publishers, 12107 Insurance Way, Hagerstown,
MD 21740.
Understanding AIDS: An Educational Booklet for Persons with Disabilities,
Their Parents, Friends and Caregivers
This study guide encourages discussion about HIV with mentally retarded
individuals. It covers subjects such as HIV transmission, risky behavior,
condoms, and safer sex (Mary Ann Carmody, 1990), To order, contact Mary
Ann Carmody, 6121 Nevada Avenue, NW, Washington, DC 20015; 202-364-5303.
What Are Friends For? HIV Safe Coloring Book
This coloring book briefly describes HIV/AIDS so that adults with low
reading skills as well as younger readers can understand (Creative License
Studio, Inc., 1990). To order, contact Creative License Studio, Inc.,
P.O. Box 10694, Chicago, IL 60610; 773-338-5809.
What You NO Can Save Your Life
This video uses the Hatsey Pudding Puppet Company to demonstrate safer
sex, including how to avoid becoming infected with HIV, to developmentally
disabled adults (American Red Cross, Knox County Indiana Chapter, 1992).
To order, contact American Red Cross, Knox County Chapter, 214 Buntin
Street, Vincennes, IN 47591; 812-882-2204.
You Can’t Get AIDS by Shaking Hands
This illustrated brochure, appropriate for mentally retarded and developmentally
delayed people, explains that HIV/AIDS cannot be transmitted by casual
contact. (Oregon Health Sciences University, 1990). To order, contact
Oregon Health Services University, Child Development and Rehabilitation
Center, P.O. Box 574, Portland, OR 97207-0574; 503-494-7522.
Young Adult Institute’s Comprehensive AIDS Staff Training Program
This report describes a comprehensive model of AIDS training developed
for a staff serving people with mental retardation and developmental disabilities
(Young Adult Institute, 1993). To order, contact Young Adult Institute,
AIDS Professional Education Program, 460 W 34 th Street, New York, NY
10001-2382; 212-563- 7474.
Hemophilia
Coping with Loss
This brochure discusses the unique difficulties associated with HIV-related
deaths, especially those associated with hemophilia (National Hemophilia
Foundation, 1990). To order, contact the National Hemophilia Foundation,
Hemophilia and AIDS Network for the Dissemination of Information, 116
West 32 nd Street, 11 th Floor, New York, NY 10001; 800-42HANDI.
Hemophilia and AIDS: AIDS in the Hemophilia Community
Written for mental health professionals, this paper discusses the impact
of AIDS in the hemophiliac community, the psychosocial issues involved,
and treatment issues (University of California at San Francisco, 1987).
To order, contact University of California San Francisco, AIDS Health
Project, P.O. Box 0884, San Francisco, CA 94143-0884; 415-502-4930.
Mental
Disabilities
HIV Education for Persons with Mental Disabilities
This report deals with legal, policy, and advocacy issues pertaining to
mental health, developmental services, and AIDS (National Association
of Protection and Advocacy Systems (NAPAS, 1990). To order, contact NAPAS,
900 Second Street, NE, Washington, DC 20002; 202-408-9514.
Serving People with Psychiatric Disability at Risk for HIV/AIDS
– Special Issue
This special issue of the Psychosocial Rehabilitation Journal addresses
the needs of people with psychiatric disabilities who are at risk for
HIV/AIDS (Boston University, 1994). To order, contact Boston University,
Sargent College of Allied Health Professions, Department of Rehabilitation
Counseling, International Association of Psychosocial Rehabilitation Services,
940 Commonwealth Avenue West, Boston, MA 02215; 617-353-3549.
Smart Sex, AIDS Prevention
This information package contains the final report of and materials used
in a study on the effectiveness of individual versus group AIDS safer
sex education for severely mentally ill male inpatients (U.S. Department
of Veterans Affairs, 1993). To order, contact U.S. Department of Veterans
Affairs, Medical Center, 70 Middleville Road, Northport, NY 11768; 516-261-4400.
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